Response 798883402

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Section 1. Privacy and consent

1. Do you consent to the Department collecting the information requested in Citizen Space about you, including any sensitive information, for the purposes of this consultation?

Please select all that apply
(Required)
Checkbox: Ticked Yes, I consent
Checkbox: Unticked No, I do not consent

2. Do you consent to the Department publishing your response to this consultation, on the Published responses page, after the consultation close date?

Please select one item
(Required)
Radio button: Unticked Yes, I consent to my full response being published
Radio button: Ticked Yes, I consent to my response being published but keep my name private
Radio button: Unticked Yes, I consent to my response being published but keep my name and organisation private
Radio button: Unticked No, I do not consent to my response being published

Section 2. Contact details

5. Are you providing input as an individual or on behalf of an organisation?

Please select all that apply
(Required)
Checkbox: Ticked Individual
Checkbox: Unticked Clinical or health professional/organisation
Checkbox: Unticked Pharmaceutical sector
Checkbox: Unticked Government
Checkbox: Unticked Consultancy
Checkbox: Unticked Medical technology sector
Checkbox: Unticked Academic/researcher
Checkbox: Unticked Consumer group/organisation
Checkbox: Unticked Other

Section 3. Proposed change no. 1 - Public consultation on the draft Terms of Reference

8. Please provide your comments.

Comments
Concerned about the speed of approval & whether sufficient time has been allocated to make these decisions

Section 4. Proposed change no. 2 - Review Reference Group

9. Please provide your comments.

Comments
Who deems that only PBAC has the authority to decide what is appropriate?
Who decides whether PBAC has sufficient clinical expertise?
There should be input from members of the public, medical professionals who share in these decisions

Section 5. Proposed change no. 3 - Publication of Review Reference Group membership

10. Please provide your comments.

Comments
This is acceptable

Section 6. Proposed change no. 4 - Removal of references to internal working groups and other wording updates

11. Please provide your comments.

Comments
Not acceptable
References to an internal working group being created for each PMR should NOT be removed
Out of date descriptions of the potential sources of data used in PMRs should remain

Section 7. General comments

12. Please provide your comments.

Comments
It appears that this is a further attempt to take control with little if any input from the general population
I am advocating for total transparency & continual input from the general public & any industry body or profession that has interest in the health & well being of our community & nation