Response 884212197

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2. What is your name?

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Carmel Taddeo

5. Are you of Aboriginal or Torres Strait Islander origin?

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Checkbox: Ticked No
Checkbox: Unticked Yes, Aboriginal
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Checkbox: Unticked Prefer not to say

7. What is your interest in pancreatic cancer?

Please select all that apply
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Checkbox: Unticked I have / have had pancreatic cancer
Checkbox: Ticked I have a family member / relative with pancreatic cancer
Checkbox: Unticked I am a member of the public / general interest
Checkbox: Unticked I have a work-related interest in pancreatic cancer - Health professional – primary care
Checkbox: Unticked I have a work-related interest in pancreatic cancer - Health professional – specialist
Checkbox: Unticked I have a work-related interest in pancreatic cancer – Health professional - nurse
Checkbox: Unticked I have a work-related interest in pancreatic cancer - Health professional – allied health
Checkbox: Unticked I have a work-related interest in pancreatic cancer – Aboriginal and Torres Strait Islander Health Worker / Health Professional
Checkbox: Unticked I have a work-related interest in pancreatic cancer - Researcher
Checkbox: Unticked I have a work-related interest in pancreatic cancer - Health policy / administration
Checkbox: Unticked I have a work-related interest in pancreatic cancer - Consumer advocacy / support

8. If you have a work-related interest in pancreatic cancer, what type of organisation do you work for?

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Checkbox: Unticked Consumer organisation
Checkbox: Unticked Health or medical service / service provider
Checkbox: Unticked Aboriginal Medical Service / Aboriginal Community Controlled Health Organisation
Checkbox: Unticked Professional college, society or organisation
Checkbox: Unticked Research organisation
Checkbox: Unticked Government / government organisation
Checkbox: Unticked Non-government organisation
Checkbox: Unticked Industry
Checkbox: Ticked Other

National Pancreatic Cancer Roadmap

12. What do you think are the most important issues to be addressed in pancreatic cancer in Australia?

What do you think are the most important issues to be addressed in pancreatic cancer in Australia?
Genetic testing such as ATM mutation
Awareness campaigns of symptoms

13. What do you think could make the biggest difference in improving outcomes for people with pancreatic cancer in Australia?

What do you think could make the biggest difference in improving outcomes for people with pancreatic cancer in Australia?
Early detection

14. Are there unique or special challenges and considerations for specific population groups with pancreatic cancer?

Are there unique or special challenges and considerations for specific population groups with pancreatic cancer?
Yes Those with a genetic predisposition

15. What do you think are the main challenges and opportunities in the clinical care of pancreatic cancer in Australia?

What do you think are the main challenges and opportunities in the clinical care of pancreatic cancer in Australia?
Limited research and information about early diagnosis and treatment options

16. What do you think are the main challenges and opportunities for research into pancreatic cancer (including basic research and clinical trials)?

What do you think are the main challenges and opportunities for research into pancreatic cancer (including basic research and clinical trials)?
Funding

17. Do you have any other comments and / or insights from your own experience with pancreatic cancer that you think would be helpful to inform the roadmap?

Do you have any other comments and / or insights from your own experience with pancreatic cancer that you think would be helpful to inform the roadmap?
A roadmap for prevention and early intervention for at risk individuals and families. Screening programs critical