Feedback on the draft National Health Genomics Policy Framework 2026 to 2030
Privacy Notice
Your personal information is protected by law, including the Privacy Act 1988 and the Australian Privacy Principles (APPs).
Who is collecting your personal information?
Your personal information is being collected by the Department of Health, Disability and Ageing (the department/ we).
What information is being collected?
If you choose to respond to this consultation process, we may collect personal information about you.
This may include your name and email address, the organisation you work for or otherwise represent, and how the issues, interests and perspectives you and/or the organisation you work for or otherwise represent inform your response to this consultation process.
You will also be asked to provide your views and opinions about the draft National Health Genomics Policy Framework 2026 – 2030 (draft Framework and Implementation Plan).
Why does the department collect your personal information?
We collect your personal information for the primary purpose of understanding the perspectives you are bringing to this public consultation process when you provide feedback on the draft Framework and Implementation Plan. Your input will help refine the draft Framework and Implementation Plan ahead of its finalisation. Your input will also inform the development of a summary of the findings gleaned from this public consultation process.
We may use your personal information to contact you about your submission, to obtain further information from you or to inform you about the outcomes of this consultation process.
What would happen if the department did not collect your personal information?
You may provide an anonymous submission.
If you do not or are unable to provide your personal information, the department may be unable to fully consider the context and relevance of your feedback and take it into account when finalising the Framework and Implementation Plan.
If you do not or are unable to provide your personal information, the department will be unable to contact you about your submission, the consultation process, or other related policy matters.
Who will the department disclose your personal information to?
If you provide your personal information, we will disclose it to Allen and Clarke Consulting Pty Ltd (Allen & Clarke), a consultancy firm which has been engaged by the Australian Government Department of Health, Disability and Ageing to support this consultation process.
If you provide your personal information, we may disclose it to state or territory government employees, and Professor Alex Brown, Professor of Indigenous Genomics at the Telethon Kids Institute and The Australian National University, who are involved in the development of the draft Framework and Implementation Plan.
Access to and correction of your personal information
The department’s privacy policy contains information about how you may access and seek correction of your personal information.
Privacy complaints
The department’s privacy policy contains information about how you may complain about a breach of the Australian Privacy Principles or the Australian Government Agencies Privacy Code and how the department will deal with complaints.
Overseas disclosure of your personal information
If you provide your personal information, we will disclose it to employees of Allen & Clarke, some of whom are based in New Zealand.
If you consent to the publication of your response to this consultation process, we may publish all or part of your response on the department’s website and/or the department’s Consultation Hub website — this may involve disclosure to overseas recipients.
You will be given the opportunity to consent or not consent to the publication of your response on Page 3 of this survey.
Further information
You can read the department’s privacy policy on the department’s website. You can obtain a copy of the APP privacy policy by contacting the department using the contact details set out at the end of this notice.
Consent
We do not require you to submit any sensitive information as part of this consultation. If you choose to provide sensitive information to us, you consent to the Department of Health, Disability and Ageing collecting that information about you for the purposes indicated above.
If you are providing the department with personal information about another individual, unless you are authorised to consent on their behalf, you will need to inform that individual of the contents of this notice, and obtain their consent to the department collecting their personal information.
Contact details
If you wish to contact the department about a privacy-related matter, including questions about this notice, please contact the department’s Privacy Officer by one of the following methods:
- Post
Privacy Officer
Department of Health, Disability and Ageing
23 Furzer Street
WODEN ACT 2606 - Email
privacy@health.gov.au - Telephone
02 6289 1555