National Pancreatic Cancer Roadmap

Overview

Cancer Australia has invited the public to have their say on the National Pancreatic Cancer Roadmap through this dedicated Consultation Hub.

The National Pancreatic Cancer Roadmap Consultation Hub is now closed. Cancer Australia thanks all those who contributed to the Roadmap through the public consultation. Please visit the Cancer Australia website for further updates on the progress of the Roadmap.

On 23 March 2020, the Minister for Health, the Hon. Greg Hunt MP invited Cancer Australia to work with the Department of Health to develop a National Pancreatic Cancer Roadmap (the Roadmap) to support improved outcomes for people with pancreatic cancer.

Cancer Australia will provide the Roadmap to the Minister for Health by December 2021.

Why develop a National Pancreatic Cancer Roadmap?

The Roadmap is being developed to support improved outcomes experienced by people diagnosed with pancreatic cancer. 

Pancreatic cancer is expected to be the third leading cause of cancer death in Australia in 2020. One in 10 people diagnosed with pancreatic cancer will survive for five years after diagnosis. Survival has not improved significantly over the last 30 years. Currently, there are no early detection tests for pancreatic cancer.

The Roadmap will identify priority areas for action over the next five years to improve outcomes for people with pancreatic cancer. It will consider all aspects of the cancer pathway, including prevention, early detection, diagnosis, treatment, supportive and palliative care. Priorities will include opportunities to improve care as well as areas requiring a research focus.

The Roadmap is anticipated to be relevant to, and be used by, a range of pancreatic cancer stakeholders including governments, researchers, health professionals, funders, pancreatic cancer organisations and people affected by pancreatic cancer.

Why your views matter

It is important that the Roadmap considers views and input from all sectors of the Australian community. To support this, Cancer Australia is undertaking a broad consultation process and all interested stakeholders are invited to have their say.

We welcome feedback from members of the public, people with pancreatic cancer and their family and carers. We are keen to hear from Aboriginal and Torres Strait Islander communities, people from all geographic locations, age groups, ethnic and cultural backgrounds.

We are also interested in views from people with a work-related interest in pancreatic cancer. This includes health professionals, professional colleges, consumer organisations, researchers and research institutes, cancer organisations, funders, peak bodies and other organisations across the non-government and government sectors.

How to have your say

Before responding, please read the Have your say on the National Pancreatic Cancer Roadmap consultation paper. There are two versions of the consultation paper:

• community version: likely to be of most interest to the general public
• technical version: likely to be of most interest to people with a healthcare or scientific background.

You can choose to have your say in two ways through the Consultation Hub:

1. answer the questions in the online survey
2. upload a written submission / response with your feedback (At Question 11 of the Online survey).

Questions to consider

If you choose to upload a written submission / response, you may find it helpful to consider some or all of the following questions.

When answering these questions, think about all aspects of the cancer pathway, including prevention, early detection, diagnosis, treatment, supportive and palliative care for people with pancreatic cancer, their families and carers.

Please also highlight any issues related to where people live and / or their cultural or social background that you think may need to be considered in the roadmap.

1. What do you think are the most important issues to be addressed in pancreatic cancer in Australia? Think about all aspects of the cancer pathway including prevention, early detection, diagnosis, treatment, supportive and palliative care for people with pancreatic cancer, their families and carers.
2. What do you think could make the biggest difference to improving outcomes for people with pancreatic cancer in Australia?
3. Are there unique or special challenges and considerations for specific population groups with pancreatic cancer?
4. What do you think are the main challenges and opportunities in the clinical care of pancreatic cancer in Australia?
5. What do you think are the main challenges and opportunities for research into pancreatic cancer (including basic research and clinical trials)?
6. Do you have any other comments and / or insights from your own experience with pancreatic cancer that you think would be helpful to inform the roadmap?

How we will use your responses

Survey responses and written submissions will be used alongside other stakeholder feedback to inform the development of the Roadmap.

Questions and assistance

If you have any questions about the consultation, or if you have any technical issues using the Consultation Hub, please contact pancreaticcancerroadmap@canceraustralia.gov.au

If you need an interpreter, please call TIS National on 131 450 and ask them to call Cancer Australia on 02 9357 9400. Our business hours are 9am to 5pm, Monday to Friday.

Publishing responses and protecting your privacy

We will ask you to provide some information about yourself to help us understand the people who have provided a response. Your personal information is protected by law, including the Privacy Act 1988 and the Australian Privacy Principles. Personal information is being collected by Cancer Australia for the purpose of public consultation about the Roadmap.

If you provide consent, your response will be published on this Consultation Hub within a few days. Your name (and the name of your organisation if provided) will only be published if you agree to this. You can choose for your response to be published anonymously. Your email address will not be published.

Responses will be reviewed before publishing to remove content that is inappropriate, offensive, or contains sensitive information.

• Cancer Australia’s privacy policy

Stay informed

Information and updates are available on the National Pancreatic Cancer Roadmap webpage on the Cancer Australia website (https://canceraustralia.gov.au/national-pancreatic-cancer-roadmap).